Well today Sophie and I went to see her feeding psychologist. Sophie seems to love her now and is not content unless she has covered her in kisses and cuddles.
We had a good chat about how Sophie's eating is progressing. Currently she is still only having small amounts of tastes but is drinking more and more. We discussed that Sophie still has no real idea what hunger is so she cant associate food with being the cure to hunger.
The plan of action is to start possibly tube weaning Sophie. I will meet with the psychologist and Sophie's feeding dietician in September to discuss the full plan. I have to bring a list of all of the foods Sophie is willing to taste/try even if it is just a lick etc We will then formulate a full battle plan.
The hope is to get some improvement with Sophie's eating by the time she goes to school. This will give us a year and we are all ready and willing to try!
I know this isn't going to be easy and Sophie is going to very miserable for possibly days and days to start with, but it will all depend on how quickly we can get Sophie to associate eating with stopping the hunger sensation.
Wish us luck and please pass on any tips or experiences of tube weaning!
Sophie has also being having problems with her bowels, more can be read about this on her CF blog http://lungsbehavingbadly.blogspot.com/.
Take care and please continue to email us your stories.
Summer Dinner Rotation 2017
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