Diary of Graz

Today i found the diary that we wrote while at Graz and thought i'd share it with you . Obviously i will try to keep it as short as possible and just put the important bits in.
Day1
Arrived at the hotel and settled in.Right outside our room we had peacocks, ducks and goats and llamas so they were enjoyed by Amelia.
Day2
Hospital today and Amelia was weighed.She is 9.35kg.Amelia went to see an occupational therapist who was pleased with her development side of things.The doctor took her off her daily feeds through ng tube and then we went on to play picnic where Amelia enjoyed playing with food and getting messy.On the night she had been on the pump feed for 1 hour when she asked for a drink and had a good amount.
Day3
Today saw the physiotherapist and Occupational therapist and then on to play picnic.Amelia was given a crisp which she put in her mouth and sucked it.We were called to see the doctor and he told us to reduce the pump feed at night by half and possibly next day take her ng tube out.Amelia weighed 9.2kg.At night she asked again for a drink.
Day4
Amelia was on 250ml on pump feed last night and today seems restless.We saw the physio this morning and she said if the tube comes out leave it out.At play picnic she was putting different foods in her mouth.Doctor told us to give her 100ml feed tonight.
Today Amelia has had 2 cups of drink.Weight 9.05kg
Day5
Amelia drinking juice and nibbling at food today.Today she didn't seem happy.The lady was trying to get her to play with plastercine and she wouldn't touch it and trying to get her to sit in a kind of swing but she wasn't interested.She was also sitting Amelia in a plastic bath and putting dried lentils over her hands and feet.Another lady had a puppet and asking Amelia to feed the puppet.The tube has come out so leaving it out.She has had juice and some breadstick today.Weight 8.9kg.
Day6
Amelia grumpy today .She had blood test and is dehydrated so had to repass tube and give her sort of salt water.Went back to hospital on night to check blood all ok.Weight 8.7kg
Day8
Asked by the one doctors why Amelia had the tube back in so explained shehad been dehydrated.She asked me when i wanted it out and i said now so she told Amelia to pull the tube out and say good bye to it.I cried.I explained Amelia had a liking for coke drink and she said that was fine its all calories.At play picnic she was constantly nibbling and she has been drinking too.
Weight 8.6kg
Day9
The lentils were used again over Amelias feet and at play picnic she was nibbling alot.She has also drank half bottle of coke and cup of tea.
Weight 8.5kg
Amelia had nibble of toast this morning and some tea. After the play picnic went to the pub where Amelia enjoyed licking mayonnaise off lettuce .
Day10
She tried some milk this morning.Today at occupational therapy Amelia went in the swing and enjoyed herself and was touching the plastercine.She has ate nearly half a bar of white chocolate today.
Weight 8.5kg
Therapists said that Amelia could go home if we wanted to as they are happy with her progress.At play picnic she was trying soup and crisps.
Weight 8.5kg
Day12
Amelia has gained weight today BRILL.
Weight 8.64kg
Day 13
Unfortunately Amelia caught a virus and is in hospital but still the nurses are told not to put ng tube back in.
Amelia was in hospital for 3 days and then i caught it so thank goodness my brilliant mom was with me and looked after us both.
The doctors were all pleased with Amelias progress and were happy for her to come home where she carried on trying different foods and drink.Even though Amelia lost weight at first and it wasn't easy going to Graz it was the best thing we could of done and so pleased we were able to go there.